Tag: rare condition
Our Tiny Son’s Condition Is So Rare, It Doesn’t Have A...
Everyone wants their child to be special, don’t they? We hold them in our arms as babies and wonder what they’ll be like as...
I Was Born With My Organs Outside My Body – Now...
Every so often, we hear of babies born with medical conditions so rare or severe it seems there’s no chance they’ll survive. Maybe they’re...
I’m Desperate To Know What’s Wrong With My Son, But The...
It would be great to write a story with a neat and happy ending, but sadly I can’t do that. At this...
Our Daughter Had Her Skull Removed At Just Five Weeks Old...
May 14, 2018. My husband and I were overjoyed to welcome our daughter into the world. Our son, Sawyer, was born just 17 months...