Tag: rare disease
Our Tiny Son’s Condition Is So Rare, It Doesn’t Have A...
Everyone wants their child to be special, don’t they? We hold them in our arms as babies and wonder what they’ll be like as...
I Was Born With My Organs Outside My Body – Now...
Every so often, we hear of babies born with medical conditions so rare or severe it seems there’s no chance they’ll survive. Maybe they’re...
Our Son Has A Rare Brain Disease – But We Are...
Our son, Sam, was a completely normal child for the first two years of his life. Sure, he tended to trip and fall over...